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Hi,
Does CCB notify us if there is any change in donor information. For example, if a grandparent dies, if he has any children, etc. how often do you update their personal information?
Thank you

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    Hi JF -

    The staff in our Genetics Department document all medical issues and updates received about a donor's personal or family medical history or an offspring's medical history. Family history and medical updates are not added to the donor's Extended Profile and Medical History because they are static documents representing the medical history of the donor at the time he entered the program.

    In most cases the medical information collected does not represent an increased risk for medical problems in the donor’s offspring. However, in the event that we receive information that indicates a specific risk for a medical problem in offspring of a donor, we attempt to contact clients to whom this information is relevant, as determined by the Medical Director.

    http://cryobank.com/Services/Genetic-Counseling/Genetics-FAQs/#answerMedicalInfo

    It is very important for all clients to officially report pregnancies/births and to keep CCB informed of any changes in their contact information so that we can inform you about any significant medical information that could be relevant to your child’s health.

    Also, clients are welcome to contact the Genetics Department at 877-743-6384 to learn of any updates on their donor.

    Regards,

    Nicole
    CCB
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